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Information, support and advocacy for families affected by Lysosomal Storage diseases, a group of rare genetic diseases.

Welcome to JSUK an organisation for the parents and carers of children affected by Joubert Syndrome a rare genetic disorder.

The National Osteoporosis Society is the only UK-wide charity dedicated to improving the prevention, diagnosis and treatment of osteoporosis and fragility fractures.

Turner Syndrome Support Society [UK] helps with practical information on living daily with TS and can in most cases offer contact with other girls and women with TS ...

Tucson, Arizona. Many mailing lists and several offline groups including youth. Also educational forums and training for businesses, providers, and the public on ...

A friendly eczema forum with lots of eczema related features and services.

The home page for the KSA organization serving individuals with Klinefelter Syndrome, XXY, XYY, XXX and other SCA conditions

Independent, low-budget, Mountain Dew-drinking, computer game playing, movie-watching and sometimes movie-making studio in Smokey Point WA.