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The Dystrophic Epidermolysis Bullosa Research Association of America (debra), the only national non-profit dedicated to funding research and providing services and ...

Information, mailing list, pictures, and help for new parents.

An organization where people with albinism, their families and those that work with them can get information, ask questions and share their experiences.

Features organization background, information about the disorder, fundraising and research details, and news.

The EBMRF is a volunteer, non-profit Foundation dedicated to helping medical scientists learn more about EB, its causes, the development of successful treatments ...

A small group of relatives and friends of EB patients founded DEBRA Canada in 1998. That informal group has evolved into a Board of 10 people who meet monthly to ...

Progeria: A very rare terminal condition. From the Greek meaning "prematurely old". Characterized by an appearance of accelerated aging. This Web Site is ...

Dystrophic Epidermolysis Bullosa Research Association. A voluntary, non-profit organization dedicated to creating awareness and providing support for families ...