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The Canadian Marfan Association (CMA) is a national charitable organization dedicated to saving lives and helping Marfan patients live a good quality of life. We ...

A global information center providing links to Marfan Syndrome Organizations aroud the world

A magazine for people with lupus and their families, lupus health professionals and researchers. Published by the Lupus Foundation of America.

Living with Marfan Syndrome is what this site is all about. The life story of Jon, and how he has learned to cope over the years.

The Ehlers-Danlos National Foundation provides information about Ehlers-Danlos Syndrome and support to people with EDS and related disorders.

Homepage of Marfan Support and Information, NSW Australia

Irish charity with information on fund raising activities and the condition.

DNA Learning Center's multimedia guide to genetic disorders. Info on symptoms, cause, inheritance, and treatment. First-hand accounts from doctors and patients.